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What is the DoMore study?
The DoMore study aims to find new ways to help children and young people with long-term disabilities, who are unable to walk, to move more in their daily routines. The programme will be co-designed, by working in partnership with young people who use a wheelchair (aged 12-25), family members of young wheelchair users, professionals and experts. They will participate in a series of virtual workshops. The researchers plan to include use of technology in the programme we develop together.
Why is the DoMore study being done?
Evidence suggests long periods of sedentary time can increase the risk of poor health, for example obesity, heart disease and type II diabetes. Being sedentary means sitting or lying down whilst awake, and not using much energy. Reducing sedentary time can help to prevent poor health. Research shows that children with disabilities spend more time being sedentary than children who don’t have a disability. Currently, there are no evidence-based programmes to help young people with disabilities to reduce their sedentary time. This one will be the first of its kind.
What we’ve done so far
We have completed steps one and two of the co-design so far. Step one focused on understanding the problem from the perspective of our wide range of participants. In step two, we used the information we collected in step one to discuss what we should aim to change in the programme we are designing. We’re currently preparing for our step 3 workshops. Step 3 focuses on what existing evidence we’ll use to help us make changes. You can get involved at any step! Anyone who would like to join the co-design is very welcome and we will make sure you have all the information you need.
We’ve written a blog about the making of this video. Click here to read it if you’d like to know more.
Who is involved?
The team includes:
- Marilyn Bradbury (Project lead),
- Dr Christine Burt and Priti Parmar, from Research and Innovation at Birmingham Community Healthcare NHS Foundation Trust,
- service users (including Nathan Giles and the West Midlands Clinical Research Network Young Persons Steering Group),
- Professor Joan Duda and Dr Sally Fenton from the School of Sport and Exercise at the University of Birmingham, Dr Sue Neilson from the School of Nursing, University of Birmingham, and Dr Elizabeth Croot from the School of Health and Related Research at the University of Sheffield,
- industry experts Clever Together, who will host the crowdsourcing platforms and Dignio, who will build the software that will be incorporated within the intervention.
How do I get involved?
If you want to learn more about the study, you can download our Participant Information Sheets below - please select the one that most closely matches your description. I am...
Register to join our study
Paralympian Hannah Dines, a trike racer and race runner with cerebral palsy is supporting the study. She said "I hope the DoMore study enables more people to be active if they want to be, and progresses the research behind why activity matters".